To establish evidence-based prac- tice guidelines in professional nursing practice, and in light of the dearth of studies investigating the psychosocial impact and quality of life issues within this cohort, a requisite exists for the examination of the adolescent indi. vidual's lived experience with KLS. Moreover, a phenomenological study examining the client's family is also warranted to ascertain their lived experience in caring for the client with KLS. This research will aifford the professional nurse and interdis ciplinary team with a greater clinical portrait of the issues and needs of not only the client, but also his/her family, both in the acute stage of the disorder and future.